A woman with long blonde hair is measuring oxygen levels of a young boy with blonde hair
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We Are Visible – The first feature-length Ehlers-Danlos syndrome documentary

Ah, what’s there to say about my first feature-length film, We Are Visible? It’s probably the most important project I ever took on, and I poured all my heart and energy into it.  Let’s start from the beginning.  We…
Belo, a young man with short brown hair sits on beautiful stairs in a garden covered in red roses. He smiles and has one hand on his black guide dog
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Firsts – A short documentary series featuring artists with disabilities

During one of my internships, I worked with Belo Cipriani, a blind journalist and advocate for people living with disabilities. Belo recently established a publishing house called Oleb Books with the mission to represent people with disabilities…
Karina, a woman with short brown hair is wearing a black hat and huge earrings
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How it all began: Getting diagnosed with Ehlers-Danlos syndrome

Oh Gosh, I feel like I have told this story too many times, but you are new here, so I might as well share it again. So this is how it all began and the reason why you are here, on my Blog, today. I try to keep it short, though.  Am…