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Why I have changed my opinion about therapy as a chronically ill person

Only two years ago, I would have never considered therapy. Well, I guess life changes, and even my stubborn self can change her mind. Up until today, I have a bit of a love-hate relationship with therapy, but I feel it changed my life for the better, and I don’t only see my therapist when… Continue Reading Why I have changed my opinion about therapy as a chronically ill person

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A letter to myself after getting diagnosed with EDS in 2014

This is a letter I wrote to myself right after getting diagnosed with EDS in 2014. It’s all the things I would have needed to hear from doctors, friends and family. And it’s also advice I gave myself. It was published by The Mighty in 2016. Maybe this text can help you if you are… Continue Reading A letter to myself after getting diagnosed with EDS in 2014

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We Are Visible – The first feature-length Ehlers-Danlos syndrome documentary

Ah, what’s there to say about my first feature-length film, We Are Visible? It’s probably the most important project I ever took on, and I poured all my heart and energy into it.  Let’s start from the beginning.  We Are Visible is a 69-minute documentary about people living with Ehlers-Danlos syndrome. It features six families… Continue Reading We Are Visible – The first feature-length Ehlers-Danlos syndrome documentary

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Firsts – A short documentary series featuring artists with disabilities

During one of my internships, I worked with Belo Cipriani, a blind journalist and advocate for people living with disabilities. Belo recently established a publishing house called Oleb Books with the mission to represent people with disabilities in a respectful and accurate way; to show how life really is for people with disabilities and/or chronic… Continue Reading Firsts – A short documentary series featuring artists with disabilities

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How it all began: Getting diagnosed with Ehlers-Danlos syndrome

Oh Gosh, I feel like I have told this story too many times, but you are new here, so I might as well share it again. So this is how it all began and the reason why you are here, on my Blog, today. I try to keep it short, though.  Am I dying? “I… Continue Reading How it all began: Getting diagnosed with Ehlers-Danlos syndrome