Two head shots. One is John Ferman, a man with short brown hair wearing a suit. He is smiling. The other one is Karina, a woman with shaved hair, wearing a black hat and huge silver hoops

In collaboration with John Ferman, CEO of the non-profit organization EDS Awareness, I am curating a new EDS newsletter called Funny Bone News. We plan for this newsletter to be a place for everyone to share their work on EDS. It’s a community project with useful resources, science updates, events, content from advocates all across the globe and more. 

Each newsletter has the following sections: 

  • Introduction by me
  • Stronger together: A short text written by an EDS advocate
  • EDS in the media: Recent articles and blogposts on EDS
  • EDS advocates: Podcasts, Social Media, YouTube channels of fellow EDS advocates
  • Advocates like us: Other interesting channels by advocates with similar conditions
  • Spotlight: Chronic Illness & Disability: Other interesting projects around disability and chronic illness overall
  • Research & Resources: Latest research on a specific topic
  • Connect & Events: Platforms to connect with other chronically ill people and recent events to join

If you would like to write some words for one of the monthly newsletter intros or if you have any link you want to share, please let me know! I am here to share your work and to connect us all. 

All recent newsletters:

May: https://archive.aweber.com/edsawareness/9u4xl/h/New_EDS_Awareness_Newsletter_.htm

June: https://archive.aweber.com/edsawareness/7DIxF/h/The_Funny_Bone_News_June.htm

July: https://www.chronicpainpartners.com/july-eds-awareness-newsletter/

You can sign up for the newsletter here: