
Why I have changed my opinion about therapy as a chronically ill person
Only two years ago, I would have never considered therapy. Well, I guess life changes, and even my stubborn self can change her mind. Up until today, I have a bit of a love-hate relationship with therapy, but I feel it changed my life for the…

A letter to myself after getting diagnosed with EDS in 2014
This is a letter I wrote to myself right after getting diagnosed with EDS in 2014. It’s all the things I would have needed to hear from doctors, friends and family. And it’s also advice I gave myself. It was published by The Mighty in…

We Are Visible – The first feature-length Ehlers-Danlos syndrome documentary
Ah, what’s there to say about my first feature-length film, We Are Visible?
It’s probably the most important project I ever took on, and I poured all my heart and energy into it.
Let’s start from the beginning.
We…

How it all began: Getting diagnosed with Ehlers-Danlos syndrome
Oh Gosh, I feel like I have told this story too many times, but you are new here, so I might as well share it again. So this is how it all began and the reason why you are here, on my Blog, today. I try to keep it short, though.
Am…