
Why I have changed my opinion about therapy as a chronically ill person
Only two years ago, I would have never considered therapy. Well, I guess life changes, and even my stubborn self can change her mind. Up until today, I have a bit of a love-hate relationship with therapy, but I feel it changed my life for the…

A letter to myself after getting diagnosed with EDS in 2014
This is a letter I wrote to myself right after getting diagnosed with EDS in 2014. It’s all the things I would have needed to hear from doctors, friends and family. And it’s also advice I gave myself. It was published by The Mighty in…

Let’s get real. This is how 2020 really was for me.
Over the last weeks, I got many kind messages from followers of my blog, often saying, “The way you handle your life with all your conditions is so inspiring. How do you do this?” Let me try to give you an unfiltered insight into my life…

We Are Visible – The first feature-length Ehlers-Danlos syndrome documentary
Ah, what’s there to say about my first feature-length film, We Are Visible?
It’s probably the most important project I ever took on, and I poured all my heart and energy into it.
Let’s start from the beginning.
We…

Firsts – A short documentary series featuring artists with disabilities
During one of my internships, I worked with Belo Cipriani, a blind journalist and advocate for people living with disabilities. Belo recently established a publishing house called Oleb Books with the mission to represent people with disabilities…

How it all began: Getting diagnosed with Ehlers-Danlos syndrome
Oh Gosh, I feel like I have told this story too many times, but you are new here, so I might as well share it again. So this is how it all began and the reason why you are here, on my Blog, today. I try to keep it short, though.
Am…