Wonder Woman with Karina's face. A woman with long brown hair in fighting gear
Resources

Basic English Resources

Ehlers-Danlos Society

Conference presentations as slides and videos by renown EDS experts:

Past Conferences

The latest classification, management guidelines and recent knowledge about comorbid conditions:

2017 Classification Papers

EDS Awareness

Webinars on absolutely any EDS-related topic by all experts:

https://www.chronicpainpartners.com

Bobby Jones Foundation

Videos related to neurological complications of EDS like CCI and Chiari

Video Library

Dysautonomia International

Videos about POTS and other forms of dysautonomia

https://vimeo.com/dysautonomia

Jon Rodis

The advocate of all advocates

www.jrmarfan58.com 

Ehlers Danlos Marfan and Related CTDs New England/MA Support Group

https://www.facebook.com/groups/211190148990266/

Disjointed by Diana Jovin

The most comprehensive book about all things EDS

https://hiddenstripes.com

Kendra Neilsen Myles 

EDS Wellness

Website

Personal Website

https://kendraneilsenmyles.com

UK & Canada

Ehlers-Danlos Support UK

https://www.ehlers-danlos.org

ILC Foundation Canada

https://www.theilcfoundation.org

Films

Behind the Visible – POTS Documentary 

We Are Visible – EDS Documentary 

Cinema Touching Disability – Disability Films

Media

Patientworthy – Rare Disease News

Blogs & Social Media 

Rea Strawhill – ME (Blog)

Spoon & Pen – Fibromyalgia (Blog)

Ryann Kress – EDS, disability, LGBTQ, sex (Insta)

EDS Unplugged – EDS (Insta)

Christina Doherty – EDS (Insta)

Oh, TWIST – EDS (Blog)

Fight Like A Warrior – Chronic Illness

Sarah Wells – EDS, Chronic Illness (Blog)

Ash Fisher – Tissue Issues, Advice Column on Healthline

Beyond my Battle – Chronic Illness (Blog and Podcast)

Podcasts

Dr. Linda Bluestein – EDS

Invisible Not Broken – EDS, chronic illness, disability

Hypermobility Happy Hour – EDS

Spoonie Village – Chronic Illness

Chronically Healing – Chronic Illness

Rare Disease Connection – Rare Diseases

Off Script Media – A collection of chronic illness podcasts

YouTube

Jeannie Di Bon – EDS

Ryan Brown – EDS

Connect with others

Chronic Warrior Collective

(This is a developing site. I am happy to include your blog, YouTube channel or other resources here)