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Resources

Basic English Resources

Ehlers-Danlos Society

Conference presentations as slides and videos by renown EDS experts:

Past Conferences

The latest classification, management guidelines and recent knowledge about comorbid conditions:

2017 Classification Papers

EDS Awareness

Webinars on absolutely any EDS-related topic by all experts:

https://www.chronicpainpartners.com

Bobby Jones Foundation

Videos related to neurological complications of EDS like CCI and Chiari

Video Library

Dysautonomia International

Videos about POTS and other forms of dysautonomia

https://vimeo.com/dysautonomia

Jon Rodis

The advocate of all advocates

www.jrmarfan58.com 

Ehlers Danlos Marfan and Related CTDs New England/MA Support Group

https://www.facebook.com/groups/211190148990266/

Disjointed by Diana Jovin

The most comprehensive book about all things EDS

https://hiddenstripes.com

Kendra Neilsen Myles 

EDS Wellness

Website

Personal Website

https://kendraneilsenmyles.com

UK & Canada

Ehlers-Danlos Support UK

https://www.ehlers-danlos.org

ILC Foundation Canada

https://www.theilcfoundation.org

Websites to connect with others

Chronic Warriors

Website

(This is a developing site. I am happy to include your blog, YouTube channel or other resources here)