Karina, who has short brown hair sits at a podium listening to the audience. Next to her is a man with glasses in a wheelchair with a service dog next to him.
Karina Sturm and Prof. Art Blaser during the Q&A after her film screening at Chapman University.

My journalistic work (and some advocacy)

English publications only


Conversation with Ian Harding about ableism, disability language, future film projects and most kept secrets (part 2) – ABILITY Magazine

In the Business of Spreading Happiness: John’s Crazy Socks – ABILITY Magazine

Jameela Jamil: Advocate First, Actress Second – ABILITY Magazine

Disjointed Book Review – Rare Revolution Magazine

Together, we aren’t rare! Let’s talk about Ehlers-Danlos syndrome – ABILITY Magazine

Guest interview with Beyond My Battle

Guest on the ‘Chronic Illness Support‘ Podcast with Sam Bowick – Topic Ehlers-Danlos Syndrome

Guest on the Patientworthy Podcast ‘Wait, how do you spell that?‘ – Topic Ehlers-Danlos Syndrome, my journalistic work and film

Guest Interview with Samantha Bowick on her Blog

Finding a new purpose: Jonathan Ayers donates 20 million to protect wild cats – ABILITY Magazine

BYkids – seeing the world through a child’s eyes – ABILITY Magazine

Gaming for all: Disability, Accessibility and Representation – ABILITY Magazine

Podcast Sturm & Drang with NORD

October EDS Newsletter

The battle for accessibility of New York City’s metro system – ABILITY Magazine

The deadliest disease in America – ABILITY Magazine

November EDS Newsletter

Guest on the Chronically Healing Podcast

PR pieces:

New study finds brands must prioritize accessibility and inclusivity to reach people with disabilities – ABILITY Magazine

New feature for people with physical disabilities to control their TV with their eyes! – ABILITY Magazine

Google launches Live Captions on Google Chrome! – ABILITY Magazine

NBCUniversal announces unprecedented programming of Paralympic Games – ABILITY Magazine

Autism Awareness: Easterseals and Rafi Nova develop sensory-friendly masks – ABILITY Magazine


100,000 people with autism participated in study to uncovering genetic causes – ABILITY Magazine


Fight Like A Warrior Blogpost about ‘We Are Visible’: https://www.fightlikeawarrior.org/post/we-are-visible-a-documentary-about-living-with-an-invisible-illness

Why I made a film about EDS — EDS Society

Why I raise awareness – for AwareCauses

The blog of the academic journal BMJ Medical Humanities published my review of the film “Who Am I To Stop It”

How My Ehlers-Danlos Journey Inspired Me to Create This Documentary – The Mighty

“Trust me, I am Sick” Review – Ability Magazine

100 years of service – Easterseals – Ability Magazine

Tom Steyer talks about his disability policy and more – Ability Magazine

#StayTheF**kAtHome – People belonging to the COVID-19 risk group speak out. – ABILITY Magazine

AB 2283: A Rare Disease Council and Ombudsperson for California’s Rare Disease Population – ABILITY Magazine

‘El Candidato’: A documentary about Bryan Russell, the first man with Down syndrome to run for public office. – ABILITY Magazine

Meet Haben Girma: disability rights advocate and first deaf-blind Harvard Law School graduate. – ABILITY Magazine

Vint Cerf — Co-creator of the Internet and Email (Video and Audio) – ABILITY Magazine

Accessibility and Inclusion: ‘This is who we are’ – PBS KIDS, a model for all media – ABILITY Magazine

How YAI, Next for Autism and Cure SMA are supporting their members during COVID-19 – ABILITY Magazine

‘Lego Oma:’ German grandma creates Lego ramps to access buildings and imagination – ABILITY Magazine

Disability Rights Activist Raul Krauthausen – ABILITY Magazine

Keith McArthur – ABILITY Magazine

Challenges and Chances: Navigating the US healthcare system – ABILITY Magazine

Athletes competing at the IRONMAN – ABILITY Magazine

Why this election is crucial for people with disabilities – ABILITY Magazine

The Bazelon Center for Mental Health: Supporting People with Mental Health Conditions – ABILITY Magazine

Ian Harding opens up about ‘Pretty Little Liars’, lupus and Germany — Teil Eins (Part 1) – ABILITY Magazine

A Doll Like Me — Every Child Should Feel Included – ABILITY Magazine

Disability, Sex and Adult Toys by and for People with Disabilities – ABILITY Magazine


“Misdiagnosis: The Global Epidemic We Should Be Talking About” – an investigative article for The Mighty.

“Why disabled journalists should report on disability” – a commentary for The Columbia Journalism Review.


My first documentary about the lives of previous and current residents of Laguna Honda’s Positive Care Unit in San Francisco is published.

“16 Things the people who decide who qualifies should know” for The Mighty

“12 easy ways to be a better friend to someone with a chronic illness” for The Mighty

“23 consequences of misdiagnoses people with EDS had to deal with” for The Mighty

“5 Career Paths That May Be Great for People With EDS” for The Mighty

“11 Must-Read Blogs and Websites for Ehlers-Danlos Syndrome Newbies” for The Mighty

“40 Brilliant Ways to Make Ehlers-Danlos Syndrome Medical Devices More Fashionable” for The Mighty

“Disability Advocate Belo Cipriani Creates Oleb Books, a New Publishing House for Writers With Disabilities” for The Mighty

“5 Strategies to Master a Day at School or Work With Ehlers-Danlos Syndrome” for The Mighty

“18 Gifts to Give Your Friend With Ehlers-Danlos Syndrome” for The Mighty

Firsts is a mini documentary series about several authors contributing to the book “Firsts – Coming of Age Stories by People with Disabilities” by Belo Cipriani.

Firsts – Episode 1: David-Elijah Nahmod

Firsts – Episode 2: Caitlin Hernandez

Firsts – Episode 3: Sam E. Rubin

All videos with descriptive audio for the blind and closed captions for the deaf


“When I was challenged to share how I really feel about my EDS” for The Mighty

“Finding the humor in my husband buying me diapers” for The Mighty


What You See and Don’t See About the Woman in This Photo” for The Mighty

“To myself when I struggled to accept my Ehlers-Danlos Syndrome diagnosis” for The Mighty

“When a Doctor told me not to think about my Ehlers-Danlos Syndrome so much” for The Mighty

“Dear Ehlers-Danlos Syndrome – a letter from your host” for Patientworthy

“When a man at the airport noticed how much pain I was in” for The Mighty

Here’s What I Would Say To The Patients Who Are Being Told Their Disease Is “Not Real” for Global Genes

“HOW DOES IT FEEL TO BE A SECOND CLASS PERSON?” for strength/flexibility/health/EDS

“Tips for traveling from Europe to the United States while being chronically ill” for EDS Wellness

Medical article about the gene Tenascin-XB and the correlation with various Ehlers-Danlos types for EDS Wellness

“My struggle to feel deserving of love as a woman with chronic illness” for The Mighty


One chapter of the book: “Our Stories of Strength – Living with Ehlers-Danlos syndrome

“Why I Wish I Opened Up to the Flight Attendant About My Invisible Illness” in The Mighty

“A long journey to diagnosis” for Suffering the Silence

“How people look at you if you are using a wheelchair without being paralyzed” for the Zippy Zebra

“10 things EDS has taught me” for Patientworthy


GRIESSL, Martin H., et al. Structural insight into the giant Ca2+-binding adhesin SiiE: implications for the adhesion of Salmonella enterica to polarized epithelial cells. Structure, 2013, 21. Jg., Nr. 5, S. 741-752.


STURM, Karina U., et al. Crystallization and preliminary crystallographic analysis of an Ig-domain-encompassing fragment of the giant adhesion protein SiiE from Salmonella enterica. Acta Crystallographica Section F: Structural Biology and Crystallization Communications, 2011, 67. Jg., Nr. 11, S. 1371-1374.