Posts

#AbleismusTötet: a research project to uncover violence against people with disabilities
CW: Violence
What is #AbleismusTötet?
#AbleismusTötet is a project initiated by the German disability rights organization AbilityWatch e. V. to uncover all cases of violence against people with disabilities in German care homes.…

Raising awareness for EDS: I was a guest in several podcasts and blogs!
Ehlers-Dan… What? Most people - and sometimes even medical professionals - do not know how to spell Ehlers-Danlos syndrome at all, let alone that they would know anything about the various symptoms that are associated with the rare illness.…

We Are Visible – The first feature-length Ehlers-Danlos syndrome documentary
Ah, what’s there to say about my first feature-length film, We Are Visible?
It’s probably the most important project I ever took on, and I poured all my heart and energy into it.
Let’s start from the beginning.
We…

How it all began: Getting diagnosed with Ehlers-Danlos syndrome
Oh Gosh, I feel like I have told this story too many times, but you are new here, so I might as well share it again. So this is how it all began and the reason why you are here, on my Blog, today. I try to keep it short, though.
Am…