Posts

Karina, a woman with super short, shaved hair sits in front of a door. She is wearing red lipstick and large silver hoop earrings
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Learning to accept life with a chronic illness.

It is not easy to live with a chronic condition. All of a sudden, your whole life changes, and nothing is like it used to be. You fall into a big hole that does not seem to have a bottom, and it is challenging to get out of it again. However,…
A black and white shot of Jameela, a woman with long black hair who rests her head on her hand
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Interview with The Good Place actress Jameela Jamil

I recently had the pleasure of interviewing actress and advocate Jameela Jamil for ABILITY Magazine. Jameela Jamil is an advocate for social justice, body neutrality, LGBTQ rights, and for a while now, she has also been using her public…
Karina, a woman with short brown hair and John, a man with a suit. Text: New newsletter. Funny Bone News
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New Newsletter: The Funny Bone News!

Because with EDS, every bone is a funny bone. John, the CEO of EDS Awareness and a dear friend of mine, asked me to send out this new newsletter once a month. It will include useful information about all things EDS: resources, important…
Karina, a woman with short brown hair is smiling, her eyes small from the sun in her face. She is wearing a neck brace and her flower tattoo on her shoulder is visible
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A letter to myself after getting diagnosed with EDS in 2014

This is a letter I wrote to myself right after getting diagnosed with EDS in 2014. It’s all the things I would have needed to hear from doctors, friends and family. And it’s also advice I gave myself. It was published by The Mighty in…
Karina, a woman with short brown hair is wearing a black hat and huge earrings
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How it all began: Getting diagnosed with Ehlers-Danlos syndrome

Oh Gosh, I feel like I have told this story too many times, but you are new here, so I might as well share it again. So this is how it all began and the reason why you are here, on my Blog, today. I try to keep it short, though.  Am…