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EDS & Aging
The EDS & Aging Project
Funny Bone Newsletter - March 2022
presented by EDS Awareness
This is a community-centered project with people older than 45 who want to share their experiences about aging as a person with EDS.…

Raising awareness for EDS: I was a guest in several podcasts and blogs!
Ehlers-Dan… What? Most people - and sometimes even medical professionals - do not know how to spell Ehlers-Danlos syndrome at all, let alone that they would know anything about the various symptoms that are associated with the rare illness.…

We Are Visible – The first feature-length Ehlers-Danlos syndrome documentary
Ah, what’s there to say about my first feature-length film, We Are Visible?
It’s probably the most important project I ever took on, and I poured all my heart and energy into it.
Let’s start from the beginning.
We…