Psychopathologische Manifestation

Sinibaldi L, Ursini G, Castori M. Psychopathological manifestations of joint hypermobility and joint hypermobility syndrome/Ehlers–Danlos syndrome, hypermobility type: The link between connective tissue and psychological distress revised. InAmerican Journal of Medical Genetics Part C: Seminars in Medical Genetics 2015 Mar 1 (Vol. 169, No. 1, pp. 97-106).

 

Soziale Auswirkungen

Eurordis Care Study

Ehlers-Danlos Syndrome

Sections of this chapter were written with the collaboration of the Association Française
des Syndromes d’Ehlers Danlos and Associazione Italiana per la Sindrome di Ehlers-Danlos (A.I.S.E.D.).

http://www.eurordis.org/IMG/pdf/voice_12000_patients/DIS_Ehlers_Danlos_Syndrome.pdf

Berglund B, Anne-Cathrine M, Randers I. Dignity not fully upheld when seeking health care: Experiences expressed by individuals suffering from Ehlers–Danlos syndrome. Disability and rehabilitation. 2010 Jan 1;32(1):1-7.

Berglund B, Pettersson C, Pigg M, Kristiansson P. Self-reported quality of life, anxiety and depression in individuals with Ehlers-Danlos syndrome (EDS): a questionnaire study. BMC musculoskeletal disorders. 2015 Apr 15;16(1):1.

Terry RH, Palmer ST, Rimes KA, Clark CJ, Simmonds JV, Horwood JP. Living with joint hypermobility syndrome: patient experiences of diagnosis, referral and self-care. Family practice. 2015 Apr 24:cmv026.